My daughter Ashlyn came up with a great idea, Seahawks suction cups. Rachel now has us setup with 12 boxes in each patient room, ready to cheer on our Seahawks to the Super Bowl! Thanks for the great idea Ashlyn!
This week we were blessed with a great group of aspiring opticians who wanted to learn more about ocular prosthetics. Instructor Lori Fender has always wanted to come learn about prosthetics and in fact when she was a student, she suggested the idea. Her instructor said no. Now that Lori is the instructor, she said “YES!” and contacted us for a time to visit.
This group of first quarter optician students was very bright, full of excellent questions and so respectful to all the patients they met this week. We talked a lot about the various ways that Opticians can aid us and our patients in getting the very best cosmetic result. We also talked about how wearing glasses can really promote eye health and protection of the remaining eye.
Another fascinating development is cosmetic optics, which is using the lens of the prosthetic side to correct cosmetic deformities in the eyelids. For instance, if the entire eyelid opening was low, a prism could be added to the prescription lens, optically raising the prosthetic eye to match the fellow side.
We love being able to foster cooperation between eye fields to better the experience, cosmetics and health of all of our patients. Thanks again for all the insights and great questions!
Here is a great article written by Marcello Di Cintio of Swerve. Features the work of Shirley Weyland of Calgary and story of Leif Erickson of Vancouver. Check it out!
A delightful young girl we have been honored to get to know was recently featured on KPLU 88.5 Radio in Seattle. Greta is such a sweet girl, listen to how her story intertwined with that of a young adult, Nina when they became roommates at Children’s Hospital in Seattle. Story by Gabriel Spitzer KPLU.
Some days we have the opportunity to watch something truly spectacular and healing occur when our patients meet each other. Today was one of those days. The devastation of retinoblastoma has the potential to tear a lot of people apart, today it brought two young ladies together in hope and friendship.
Ashlyn is a sweet 2 year old who came in today to get her first prosthesis. She has been a bit tentative of the whole process of trying on her prosthesis. Coincidentally, (if you believe in coincidence) Sydney a very sweet 16 year old came in to begin the process of a new prosthetic eye. Without any prompting, Sydney introduced herself and showed Ashlyn how easy it was for her to put in and take out her own prosthetic. Ashlyn’s cute little brown eye got so big and her heart grew so brave. She sat right down and did an amazing job of allowing us to install her prosthetic eye. She was so brave and so proud of herself. We are so proud of her and Sydney and their parents who were able to witness this very sweet and hopeful moment in time. Thank you Ashlyn and Sydney for warming all of our hearts today!
Scientists find gene linked to child blindness – A team of scientists, including researchers in Edinburgh, have identified genetic changes linked to coloboma, which affects around one in every 5,000 births.
A gene known as YAP1 was found not to be working in some patients, leading to the condition. The researchers hope the findings can lead to better diagnosis as well as treatments which may be able to reverse the problem.
Super Bowl starts in an hour. We can’t wait!!! We have definitely noticed an uptick in Seahawks fever around the region. Occasionally we put “tattoos” on the top of patients eyes, we have been doing a lot of Seahawk logos in the last couple weeks! Here is a sampling of the 12th man energy. GO HAWKS!!!
We couldn’t resist posting these beautiful photos from a patient who recently got married. She is such a stunning and beautiful bride. Love the bold colors and festivity!
Here is what the bride had to say:
“I wanted you to see your handy work in my wedding photos. No one could have ever known that I have a prosthetic eye. Because of you I felt so confident and beautiful on my wedding day.
Thank you thank you thank you!!!!!!!”
We are so happy to have found Specs for Little Heroes last year. We were so impressed with this organization that our office voted to support them this year. Many children have been blessed by the work of this organization – ensuring that children affected by retinoblastoma can receive and wear appropriate and well-fitting glasses to protect their eye(s).
Specs for Little Heroes was founded by Erin & Adam LaFleche after their son Justin was affected by retinoblastoma. They discovered the high cost of protective eyewear for kids and that insurance often will not cover this necessity.
Here is a great article written by the mother of one of our young patients. She is a true inspiration and a model to others for persevering and overcoming obstacles.